For Estella

I am thankful for many things and one of those is my two healthy children. Whilst browsing Twitter, I came across the story of Estella. Estella died at the age of only eight months of a genetic condition, SMA or Spinal Muscular Atrophy. I hope this blog can help raise awareness of the condition and at the same time, I would like to call for submissions of handmade stars to create a wall for Estella and all the children who use Bluebell Wood Hospice where Estella stayed.

Stars should be between 5cm and 15cm across and suitable to be displayed on a wall. Obviously stars will need to be child friendly, both visually and as I am hoping to create a piece than can act as sensory stimulation for the children at the hospice, the pieces will also need to be safe for small fingers...non toxic, no sharp edges, beads and buttons securely sewn or glued.

Monday 23 April 2012

Let's get this going!

I hadn't realised I was quite this bad at updating my blog....I thought I had told you about my finished stars, but it appears not! I am a bad blogger *hangs head in shame*

Apologies over....so what's going on from my end?

I have two completed ceramic stars:

Moss....


 Synasthesia

I am still working on more pieces.

In other news, a small article about the project will be coming out in Popular Crafts magazine in May! Here is my article, of course it is possible it may have been edited by the time it is printed.

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Whilst browsing twitter, I became aware of @EstellaStar1 The story of two parents who lost their baby aged only 8months old from a genetic condition, SMA or Spinal Muscular Atrophy. SMA takes away the baby’s movement, and eventually their ability to breathe on their own and Estella spent the last few months of her life in Bluebell Wood Children’s Hospice. I don’t know why this particular story touched me so much, maybe because the her parents were trying so hard to raise the public awareness of the disease, but I thought maybe I could help. Not only would I like to help raise the awareness of the condition, but also it would be lovely to give something to Bluebell Wood Children’s Hospice in memory of Estella and also as a sensory wall for all the other children who spend their time there.

I would love you to join me in making stars for the reception area of Bluebell Wood in whatever media you choose. Variety is the spice of life so they say and a riot of texture and colour in many different media would certainly enhance the lives of the children, parents and staff at the hospice.

Stars should be between 5cm and 15cm across and suitable to be displayed on a wall. Obviously stars will need to be child friendly, both visually and safe for small fingers...non toxic, no sharp edges, beads and buttons securely sewn or glued. As some children are not mobile, some of the stars will be attached to the wall with Velcro. Embroidery, ceramic, crochet, printing, painting, collage, knitting, weaving, woodwork, stained glass, polymer clay....anything you do, we would love to see on Estella’s Wall. Any stars I receive will be shown on my blog with links to your blog/shop/etc.

The deadline for the project is July 31st. Please take a look at my blog http://www.estellaswall.blogspot.com/ to see what others have created and for more information. You can contact me for an address via my blog or @lisaseaurchin on Twitter



Further online reading:






Search #smashsma on twitter

Sign the petition for free SMA screening here: http://epetitions.direct.gov.uk/petitions/25997
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I hope we'll have some more stars to show them then. Although the deadline is still a way off, it would be great to have some stars to show people. That will encourage others to join the project.

I do have a small insentive....the first ten people to send me their finished stars will recieve a porcelain star brooch or pendant. I'm making these (they will be coloured when they are finished) and hope to find somewhere where I can sell them to raise money for SMA research.


So...I promise to be a bit more pro-active, and get this project on the right track....who's with me?!